Oh boy…


One of the local news stations picked up the story about the twins needing surgery in St Louis. They want to come over to our house this afternoon to talk about Beckwith-Wiedemann Syndrome and our fundraising efforts. This is a great opportunity for us to get the word out about BWS!


I am at work so The Husband will be doing the interview. Alone. With three unpredictable children. You never quite know what the kids will do, say, or wear when there are cameras around. Especially OUR children.

So, if in a few days someone sends you one of those viral YouTube links titled “Local News FAIL – See what these little boys did to a reporter! You won’t believe it!!”….You’re welcome.


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